New AT-HOME Option to Participate
As an option to help lessen potential barriers for families who live far from a Fragile X clinical study site or find it too challenging to go to a site, the study visits for RECONNECT can now be conducted AT HOME through a combination of at-home and virtual visits.
If you have a desire for your child (age 3 through 22 years old) to participate in a clinical trial, but going to a study site may be too much of a barrier, this option may be for you.
Eligible participants living anywhere in the USA other than Alaska, Hawaii, and Washington DC may participate.
Please go to fragilexhelp.com to fill out a form to be contacted or call 833-680-1155
During an “at-home” visit, a study nurse will visit your home to conduct study assessments along with having some study staff who will join virtually on a call/video communication. During ‘virtual’ visits, all assessments will be done virtually through a live video communication from your home.
Please reach out to your Science 37 Clinical Research Coordinator via phone, email, or text message. They will be happy to answer any questions or concerns and will be sure to communicate them with the study doctor. If needed, a virtual visit or phone call can be set up with the study doctor as well.